CTN Family Resource Discussion List

A Forum for Posting, Discussing and Sharing Information on Disability Topics for Children & Youth in York Region & Simcoe County

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Diagnosis-Based Information and Resources

If you have a child or youth who has been diagnosed with a condition, please check this forum for interesting topics and resources, and to speak with others looking for information and support.

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  • No new posts Acquired Brain Injury
    "Acquired Brain Injury (ABI) is defined as damage to the brain, which occurs after birth, as a result of a traumatic or non-traumatic event and is not related to a congenital or a degenerative disease and can result in temporary, prolonged or permanent impairments in cognitive, emotional, behavioural or physical functioning."

    From the Ontario Brain Injury Association
    http://www.obia.on.ca/whatisabi.html
    16 Topics
    16 Posts
    Last post by CTNAdmin View the latest post
    on Sun Dec 14, 2008 12:54 pm
  • Agenesis of the Corpus Callosum
    "Agenesis of the corpus callosum (ACC) is a birth defect in which the structure that connects the two hemispheres of the brain (the corpus callosum) is partially or completely absent. ACC can occur as an isolated condition or in combination with other cerebral abnormalities... The effects of the disorder range from subtle or mild to severe, depending on associated brain abnormalities..."

    From the National Institute of Neurological Disorders and Stroke (NINDS)
    http://www.ninds.nih.gov/disorders/agen ... enesis.htm
    4 Topics
    4 Posts
    Last post by rhonda View the latest post
    on Thu Jun 05, 2008 1:18 pm
  • Autism Spectrum Disorders
    "Autism Spectrum Disorders are lifelong neurodevelopmental disorders that affect how people communicate and relate to others. The range and intensity of disability varies, but all people affected by Autism Spectrum Disorders have difficulty with communication, learning and social skills...Autism results from a neurological disorder that impedes normal brain development in the areas of social interaction and communication skills."

    From the Geneva Centre for Autism
    http://www.autism.net
    31 Topics
    35 Posts
    Last post by lisa View the latest post
    on Tue Jul 20, 2010 7:40 pm
  • Asperger's Syndrome
    Asperger's Syndrome (AS) is one of several autism spectrum disorders (ASD) characterized by difficulties in social interaction and by restricted, stereotyped interests and activities.
    "Individuals with AS can exhibit a variety of characteristics and the disorder can range from mild to severe. Persons with AS show marked deficiencies in social skills, have difficulties with transitions or changes and prefer sameness. They often have obsessive routines and may be preoccupied with a particular subject of interest. They have a great deal of difficulty reading nonverbal cues (body language) and very often the individual with AS has difficulty determining proper body space. Often overly sensitive to sounds, tastes, smells, and sights, the person with AS may prefer soft clothing, certain foods, and be bothered by sounds or lights no one else seems to hear or see..."
    From OASIS http://www.udel.edu/bkirby/asperger/aswhatisit.html
    7 Topics
    7 Posts
    Last post by lisa View the latest post
    on Fri Jul 16, 2010 7:37 am
  • Blind/Low Vision
    "Someone who is considered to be blind is someone who cannot see, but may have a little vision or can see light. Most people who are blind will use a mobility aid of some sort to help them with navigation.

    Someone who is considered to have low vision may see light, darkness, shapes and/or figures. Some can read large print and some cannot. Some may use mobility aids and some may not. There are varying degrees of vision loss, which include low vision and being “legally blind”.
    From Disability Resource http://www.disabilityresource.uic.edu/v ... w%20Vision
    12 Topics
    12 Posts
    Last post by lisa View the latest post
    on Thu Jun 17, 2010 8:45 am
  • No new posts Cerebral Palsy
    "The term cerebral palsy refers to any one of a number of neurological disorders that appear in infancy or early childhood and permanently affect body movement and muscle coordination but don’t worsen over time...."

    From National Institute of Neurological Disorders and Stroke http://www.ninds.nih.gov/disorders/cere ... _palsy.htm
    6 Topics
    6 Posts
    Last post by lisa View the latest post
    on Thu Jun 17, 2010 8:03 am
  • Developmental Apraxia/Dyspraxia
    Developmental Apraxia of Speech is a speech disorder that interferes with a child's ability to correctlypronounce sounds, syllables and words. It is the loss of ability to consistently position the face, tongue, lips, jaw to propduce speech sounds and for sequencing those sounds into syllables or words.
    (from http://www.tayloredmktg.com/dyspraxia/das.shtml#what)

    Developmental Dyspraxia (also known as Developmental Co-ordination Disorder) is a neurologically based disorder of the processes involved in praxis or the planning of movement to achieve a predetermined idea or purpose, which may affect the acquisition of new skills and the execution of those already learned. More specifically, it is a disorder of praxis, or the process of ideation (forming an idea of using a known movement to achieve a planned purpose), motor planning (planning the action needed to achieve the idea), and execution (carrying out the planned movement).
    (from http://www.dyspraxia.org.nz/what_is.htm)
    5 Topics
    5 Posts
    Last post by CTNAdmin View the latest post
    on Sat Jan 31, 2009 4:20 pm
  • Deaf/Hard of Hearing
    "People who are deaf hear little to no auditory information. Hearing aids usually do not help or are only helpful in altering for loud noises...If a person has severe to profound hearing loss, they are labeled deaf.

    Those who are hard of hearing may have some auditory input, but may have difficulty understanding the human voice or discriminating sounds. People who are hard of hearing may or may not wear hearing aids, and may or may not use sign language. There is a range from mild to moderate to severe hearing loss. Those who fall into this category are usually labeled hard of hearing..."

    From Disability Resource
    http://www.disabilityresource.uic.edu/v ... %20Hearing
    17 Topics
    17 Posts
    Last post by lisa View the latest post
    on Thu Jun 17, 2010 8:39 am
  • No new posts Down Syndrome
    "Trisomy 21 syndrome...often called Down syndrome, due to an extra chromosome number 21 (trisomy 21). The chromosome abnormality affects both the physical and intellectual development of the individual."
    12 Topics
    12 Posts
    Last post by lisa View the latest post
    on Thu Jun 17, 2010 7:52 am
  • Dysarthria
    "Dysarthria is a speech disorder that is due to a weakness or incoordination of the speech muscles. Speech is slow, weak, imprecise or uncoordinated. It can affect both children and adults. "Childhood dysarthria" can be congenital or acquired. It is often a symptom of a disease, such as cerebral palsy, Duchenne muscular dystrophy, myotonic dystrophy, Bell palsy. In both adults and children, it can result from head injury.''

    From http://home.ica.net/~fred/anch10-1.htm
    1 Topics
    1 Posts
    Last post by CTNAdmin View the latest post
    on Sat Dec 13, 2008 3:07 pm
  • Fetal Alcohol Spectrum Disorder
    "Fetal Alcohol Spectrum Disorder (FASD) is the term used to describe the range of effects caused by drinking alcohol during pregnancy. These effects may include physical, mental, behavioural and/or learning disabilities with possible lifelong implications. Health Canada estimates that approximately 9 in every 1,000 infants are born with FASD.

    Some children with FASD have physical disabilities, but many of the effects are not visible and may include problems with learning, memory, attention, problem solving, behaviour, vision and hearing. They may not understand social situations and their behaviour is often interpreted as problematic, rather than a symptom of an underlying condition."
    from B.C. Ministry of Child and Family Development
    http://www.mcf.gov.bc.ca/fasd/
    1 Topics
    5 Posts
    Last post by lisa View the latest post
    on Tue Apr 20, 2010 4:26 pm
  • No new posts Genetic Syndromes
    "A syndrome is a disease or disorder that has more than one identifying feature or symptom. Each particular genetic syndrome will have many typical features, depending on which aspects of development are affected by the abnormal genes or chromosomes."

    From the University of Michigan Health System
    http://www.med.umich.edu/1libr/yourchild/genetic.htm
    11 Topics
    27 Posts
    Last post by CTNAdmin View the latest post
    on Sun Jul 11, 2010 10:09 am
  • Hemiplegia
    "Hemiplegia literally means paralysis of half of the body. When someone has hemiplegia ('hemi' means 'half' in Greek) it is because one of the hemispheres of the brain has been damaged, usually before, during or soon after birth. Childhood hemiplegia is a relatively common condition, affecting up to one child in a thousand."

    From HemiHelp http://www.hemihelp.org.uk/hemiplegia/w ... hemiplegia
    1 Topics
    3 Posts
    Last post by CTNAdmin View the latest post
    on Wed Jan 07, 2009 4:49 pm
  • Hyper/Hypotonia
    Hypotonia, also called floppy infant syndrome or infantile hypotonia, is a condition of decreased muscle tone. The low muscle tone can be caused by a variety of conditions and is often indicative of the presence of an underlying central nervous system disorder, genetic disorder, or muscle disorder. Muscle tone is the amount of tension or resistance to movement in a muscle. It is not the same as muscle weakness, which is a reduction in the strength of a muscle, but it can co-exist with muscle weakness.
    from http://www.healthofchildren.com/G-H/Hypotonia.html

    Hypertonia is a condition marked by an abnormal increase in the tightness of muscle tone and a reduced ability of a muscle to stretch (i.e. an increased stiffness). It is generally accompanied by (increased) spasticity of the particular muscles.
    6 Topics
    7 Posts
    Last post by lisa View the latest post
    on Wed Nov 11, 2009 11:38 pm
  • No new posts Microcephaly
    "Microcephaly is a medical condition in which the circumference of the head is smaller than normal because the brain has not developed properly or has stopped growing. Microcephaly can be present at birth or it may develop in the first few years of life. "
    From NINDS http://www.ninds.nih.gov/disorders/micr ... ephaly.htm
    2 Topics
    2 Posts
    Last post by CTNAdmin View the latest post
    on Sat Jan 31, 2009 8:25 pm
  • Muscular Dystrophy
    "Muscular dystrophy is the name for a group of neuromuscular disorders that are characterized by progressive weakness and wasting of the voluntary muscles that control body movement. As muscle tissue weakens and wastes away, it is replaced by fatty and connective tissue.

    Each form of muscular dystrophy is caused by an error in a specific gene associated with muscle function; however, specific disorders within this group vary in many ways. The muscles involved are different from one disorder to another. The severity of the symptoms, the age at which the symptoms appear, how fast the symptoms progress, and what pattern of inheritance the disorder follows, are all factors which differ among the various forms of muscular dystrophy. Even within a specific disorder, several individuals with the same disorder may experience the disorder and its symptoms quite differently..."

    From Muscular Dystrophy Canada
    http://www.muscle.ca/index.php?id=1008&L=0
    8 Topics
    8 Posts
    Last post by lisa View the latest post
    on Fri Jul 23, 2010 3:23 pm
  • No new posts Noonan Syndrome
    From http://www.noonansyndrome.org

    Noonan Syndrome is a condition which affects both children and adults. It is believed that 1 in 1,000 to 1 in 2,500 children worldwide are born with this condition.
    2 Topics
    2 Posts
    Last post by CTNAdmin View the latest post
    on Sat Oct 31, 2009 7:02 pm
  • Premature/Low Birthweight
    "A premature baby, or preemie, is born before the 37th week of pregnancy...Because they are born too early, preemies weigh much less than full-term babies. They may have health problems because their organs did not have enough time to develop. Preemies need special medical care in a neonatal intensive care unit, or NICU. They stay there until their organ systems can work on their own."
    From Medline Plus http://www.nlm.nih.gov/medlineplus/prematurebabies.html

    "Low Birthweight - Babies born weighing less than 5 pounds, 8 ounces (2,500 grams) are considered low birthweight. Low-birthweight babies are at increased risk of serious health problems as newborns, lasting disabilities and even death..."
    From March of Dimes http://www.marchofdimes.com/professiona ... 2_1153.asp
    2 Topics
    2 Posts
    Last post by CTNAdmin View the latest post
    on Sun Feb 08, 2009 2:37 pm
  • Seizure Disorders / Epilepsy
    "Epilepsy is a medical condition that produces seizures affecting a variety of mental and physical functions. It’s also called a seizure disorder. When a person has two or more seizures, they are considered to have epilepsy.

    A seizure happens when a brief, strong surge of electrical activity affects part or all of the brain. One in 10 adults will have a seizure sometime during their life.

    Seizures can last from a few seconds to a few minutes. They can have many symptoms, from convulsions and loss of consciousness to some that are not always recognized as seizures by the person experiencing them or by health care professionals: blank staring, lip smacking, or jerking movements of arms and legs..."

    From http://www.epilepsyfoundation.org
    2 Topics
    2 Posts
    Last post by CTNAdmin View the latest post
    on Tue Jun 03, 2008 2:41 pm
  • No new posts Spina Bifida/Hydrocephaly
    is a developmental birth defect involving the neural tube: incomplete closure of the embryonic neural tube results in an incompletely formed spinal cord. In addition, the vertebrae overlying the open portion of the spinal cord do not fully form and remain unfused and open. This allows the abnormal portion of the spinal cord to stick out through the opening in the bones... The terms spina bifida and myelomeningocele are usually used interchangeably.
    9 Topics
    9 Posts
    Last post by CTNAdmin View the latest post
    on Sun Dec 14, 2008 12:46 pm
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